Geert with his little duck pottery with football and helmet (almost blue and maize) in a small souvenir shop in Spain last year.
Where were you born and raised?
- In was born 1965 in Hamburg, Germany
- Hamburg, Germany - I´m still living in Germany´s most beautiful town
- 08/12/2009 – age: 44, IGG Kappa
- I even haven´t heard a word about it
- No, nobody
- Nothing specific, I´ve just been weak all the time
How many times were you referred before actually being diagnosed?
- Just one time. My doctor sent me directly to the hospital and the first blood test showed the MM indicators
- Asklepios Hospital, Hamburg, Germany
Explain your treatment history:
- 09/2009:3 cycles PAD
- 01/2010: Autologous Transplant #1
- 04/2010: Autologous Transplant #2
Why did you or your doctor choose a specific treatment?
- Fortunately our team of doctors is really experienced and we have a dedicated ward for stem cell transplants. So, the decision was based on the “typical” criteria (staging, etc.) and the doctor´s experience
- No, side effects at all
- The first days after diagnosis when I and my family started to understand what it really means.
- Accept the situation and don´t start asking yourself questions like “Why me? Why in the age of 45 when the average is 71?”
- Find a team of doctors you really trust
- Learn about MM and treatment options but choose only “trustworthy” sources and discuss “your” findings with your doctors
- Start to fight MM, comply to the rues the doctors give you and finish your treatment plan
- Never quit!!
How have you been able to stay positive and encouraged in your MM journey?
- From the first day till complete remission – With the help of my wife, daughters, family and friends. As soon as possible live your normal live even during times of chemo and during hospital stays. In times of cell phones and internet it is quite simple to stay connect when being in hospital. I´ve used internet video telephony to talk with my daughters because they were not allowed in the transplant ward. I also follow the various sport seasons on the internet. For me it also worked quite well to stay in contact with my colleagues and see progress on the projects I used to work for before and between my hospital stays. But not all these things might work for other MM patients as well. Everybody has to find his own way but I hope some of my ideas will help.
- Some things became less important but today (one year after the last HDCT/transplant and with great results) it is pretty much as it was before. Of course from time to time I think about MM but not too much. When time is limited why should I waste it by thinking about MM all the time. The thing I have changed is that I fulfilled some of my plans/ dreams. After being in Ann Arbor and the Big House I wanted to also see a game at Penn State. That´s what I did last year.
- Maybe my father during WWII
- The IMF website and on facebook and the DKMS on facebook