tag:blogger.com,1999:blog-3717294245181788695.post40938670532186651..comments2024-03-15T07:50:28.649-04:00Comments on multiple myeloma for dummies: Cycle #4: Test Results are in!Cassiehttp://www.blogger.com/profile/13526228213366026025noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-3717294245181788695.post-70152793854434984972010-01-13T14:22:23.195-05:002010-01-13T14:22:23.195-05:00That's wonderful news! I'm so happy that t...That's wonderful news! I'm so happy that things are going well!Amy McKennahttps://www.blogger.com/profile/12775365369872884410noreply@blogger.comtag:blogger.com,1999:blog-3717294245181788695.post-79500154966866222962010-01-13T06:25:23.952-05:002010-01-13T06:25:23.952-05:00Awesome Feresa! I will be going Maize (yellow) and...Awesome Feresa! I will be going Maize (yellow) and Blue in a few weeks followed by a head buzz!<br /><br />Blessing on your transplant and that the MM in your body would forget how to return.Anonymoushttps://www.blogger.com/profile/04782359902659250198noreply@blogger.comtag:blogger.com,1999:blog-3717294245181788695.post-56757156662348632902010-01-12T16:08:48.883-05:002010-01-12T16:08:48.883-05:00As I was sitting here with red dye on my hair I re...As I was sitting here with red dye on my hair I remembered reading about your intentions - not decided yet? After reading some of your blog I think I need to read more since a lot of it means nothing to me. I just know that the paraprotein is not registering in my blood now. I go for my stem cell transplant hopefully next week hence the red hair dye, which I better go and wash off! All the best to you and yours.feresaknithttps://www.blogger.com/profile/14818638535417712636noreply@blogger.comtag:blogger.com,1999:blog-3717294245181788695.post-44495987616408700752010-01-10T01:15:46.935-05:002010-01-10T01:15:46.935-05:00Kate- Great to hear from you! Oh how I would love ...Kate- Great to hear from you! Oh how I would love to return to Mrs. Carter's kindergarden class sometimes...that's when life was good :)<br />Karen- What was your M-spike pre- and post-transplant?<br />Erin- you can't have one without the other..hahahaha. Okay, you can be the one exception.<br />Brenda- you always rock to the nth degree. Thx!<br />Jody- MM needs more people like you. I hope to follow in your foot steps once this disease is behind us.<br />Jerry- it was your numbers that inspired me to post them. Very helpful information<br />Dough Boy- thanks for the support!Unknownhttps://www.blogger.com/profile/07428852240942763234noreply@blogger.comtag:blogger.com,1999:blog-3717294245181788695.post-48933888361597981952010-01-09T13:50:45.028-05:002010-01-09T13:50:45.028-05:00Outstanding Phil. Keep the fight in the heart up....Outstanding Phil. Keep the fight in the heart up.The Dough Boyhttps://www.blogger.com/profile/13980559339619477876noreply@blogger.comtag:blogger.com,1999:blog-3717294245181788695.post-36966353717211476212010-01-09T05:51:57.724-05:002010-01-09T05:51:57.724-05:00Phil,
It is good to see you are having a good resp...Phil,<br />It is good to see you are having a good response to the chemo. Thank you for publishing your numbers. I have not found many patients that post both their monoclonal protein number and their Free Lite test numbers. I don’t think many patients that have an m protein get the Free Lite test. It will be interesting to see where your kappa light chain protein count is when your m protein is not measureable. Since the Free Lite test is more sensitive than the test they use to measure the m protein I think there is a chance the kappa light number will still be a little above normal when the m protein first becomes not measureable.<br />Concerning your number 2 on what you want to happen next. Your number of free light chains proteins are low compared to some other myeloma patients. If you keep your liquids up you should be able to pass these through the kidneys without a problem. The kidneys can carbolize some of these free light chain proteins. So the abnormal level can disappear from the urine before the blood. Fifteen percent of the myeloma patients are free light chain secretors only. These tend to be the patients than have high levels of free light chains. The kappa type tends not to be as dangerous to the kidneys as the lambda type. In the lambda type two of the chains can stick or bond together and this will clog the kidneys more than a single light chain. Here are the blogs of a couple of people who post their free kappa light chain numbers:<br />http://myelomadawg.blogspot.com/2009/12/december-10-2009.html<br />http://www.nesseler.org/pages/2009/12/two-miracles.htmlJerryhttps://www.blogger.com/profile/08334002321240267987noreply@blogger.comtag:blogger.com,1999:blog-3717294245181788695.post-32897034342931560732010-01-08T18:41:34.711-05:002010-01-08T18:41:34.711-05:00love to hear the positive news! i lost my mother 7...love to hear the positive news! i lost my mother 7 years ago to MM and have been raising money for it since and am so pleased that treatment and outcomes are getting better and better. keep up the good work my friend!JBMhttps://www.blogger.com/profile/14057807142220154146noreply@blogger.comtag:blogger.com,1999:blog-3717294245181788695.post-35040692165479525542010-01-08T17:18:18.486-05:002010-01-08T17:18:18.486-05:00Hi Phil and Cassie,
This is the BEST news of the ...Hi Phil and Cassie,<br /><br />This is the BEST news of the day!!! Know that many prayers, much love and many good wishes are sent your way. <br /><br />Love to all,<br /><br />Brenda N.Unknownhttps://www.blogger.com/profile/12243491765211998744noreply@blogger.comtag:blogger.com,1999:blog-3717294245181788695.post-56260612086556390562010-01-08T10:29:50.005-05:002010-01-08T10:29:50.005-05:00That's great news, Phil! Will keep you(well, m...That's great news, Phil! Will keep you(well, maybe not the wolverines) in prayer and am glad to be able to follow your progress.Erinhttps://www.blogger.com/profile/08557070102064579369noreply@blogger.comtag:blogger.com,1999:blog-3717294245181788695.post-88223963413644789322010-01-08T09:47:58.128-05:002010-01-08T09:47:58.128-05:00Woo hoo! Great news!! If you're collecting har...Woo hoo! Great news!! If you're collecting harvest info, here's my own experience: My M-spike was around 2.5-ish when I harvested. My doc at Mayo said that was fine, because the important thing was for me not to have too many rounds of treatment that would slow down the stem cells. (I'd had 6 cycles before my harvest, and then went on to have 25 rounds total). Good luck!!!Karenhttps://www.blogger.com/profile/01731696289669656004noreply@blogger.comtag:blogger.com,1999:blog-3717294245181788695.post-32409159550432300712010-01-08T07:47:25.189-05:002010-01-08T07:47:25.189-05:00More great news! I can't imagine how much work...More great news! I can't imagine how much work this is for you and your family, but I'm thinking about you.Katehttps://www.blogger.com/profile/07349712699592341218noreply@blogger.com