tag:blogger.com,1999:blog-3717294245181788695.post617749931716202156..comments2024-03-15T07:50:28.649-04:00Comments on multiple myeloma for dummies: Myeloma Mondays #3: Jodi from New JerseyCassiehttp://www.blogger.com/profile/13526228213366026025noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-3717294245181788695.post-91946356569475313772011-01-04T15:02:14.418-05:002011-01-04T15:02:14.418-05:00Jodi, you are a true inspiration to me. I was diag...Jodi, you are a true inspiration to me. I was diagnosed Nov. 5th 2010, stage 3a. I havent had a full dose of chemo yet due to my low hemoglobin and or low plt. count. My oncologist has just turned me over to Emory Hospital in Atlanta GA. where hopefully they can figure me out. I just wanted you to know you sense of humor is wonderful and thank you for the smile you have put on my face. Your a trooper.Amyhttps://www.blogger.com/profile/12592995218271536241noreply@blogger.comtag:blogger.com,1999:blog-3717294245181788695.post-75800786463523427622010-09-22T22:29:47.353-04:002010-09-22T22:29:47.353-04:00Quick update.......Yes, I have now lost my hair. ...Quick update.......Yes, I have now lost my hair. And you know what? When it started falling out 10 days after a cycle of IV cytoxan, I couldn't wait to get rid of it. For all my concerns, I think I have dealt with the hair loss in fine fashion. I am now the proud owner of "Miranda." Why do wig companies name their products like that? Actually, I want to know how I can get such a job and how much it pays. With Miranda, I never have a bad hair day and as a bonus, I get to sleep a half hour later each morning and still make it to work on time.<br />I am about to do one more round of cytoxan next week and then finally, hopefully, collect my stem cells and begin the transplant process. <br />This week marks the anniversary of my diagnosis and has brought on some pretty powerful emotions. Looking back, I wasn't sure I would be here this September. Now, I am planning many more Septembers.<br />Thank you all for your kind thoughts and prayers. I wish you all the best.<br /><br />Jodi<br /><br />JodiJodihttps://www.blogger.com/profile/07128765102912774603noreply@blogger.comtag:blogger.com,1999:blog-3717294245181788695.post-56958634605802667972010-09-19T16:08:25.625-04:002010-09-19T16:08:25.625-04:00hey Jodi, on September 30th I will be celebrating ...hey Jodi, on September 30th I will be celebrating 1 year post stem cell transplant ... I had my head shaved Oct 2, because after 3 days of losing my hair the nurses said enough already ... who knew you could have so much hair. The good news is that I did not have to shave my arms or legs for about 9 months, or pluck my eyebrows ... the chin hairs cont'd to grow however. I stocked up on scarves. I did not want to do a wig and because it was over the winter, I needed hats. It gets cold here in Canada :) I am proud to say that now instead of long straight hair I have what my friends have termed "chemo curls" ... folks actually thought I had a perm. Seriously, I like you was concerned about my hair, but after every thing else, it is just hair. I wish you the best of luck in your upcoming treatments. You are a brave and courageous woman. <br />On Friday I saw my family dr. and she told me that my hemoglobin was 8 just before I started Dex, I was still working, trying to go to the gym etc. and she had no idea how I was walking let alone still functioning. She told me that I have surprised many by what I have accomplished in a year and I hope that you surprise everyone too!Lorihttps://www.blogger.com/profile/01690611279777195788noreply@blogger.comtag:blogger.com,1999:blog-3717294245181788695.post-61788931642306596552010-07-23T13:44:32.896-04:002010-07-23T13:44:32.896-04:00Jodi, after what you've been through, the SCT ...Jodi, after what you've been through, the SCT will be a breeze. Don't stress over losing your hair. I wore beautiful silk scarves as a wig in Houston during our brutal summer is miserable. Your hair will begin to grow three months from SCT and you'll be good to go three months after that. Best wishes to you. Try to see the SCT as the miracle it is.Yellow Rosehttps://www.blogger.com/profile/03258905764440422101noreply@blogger.comtag:blogger.com,1999:blog-3717294245181788695.post-88376392029789419032010-07-07T12:42:17.166-04:002010-07-07T12:42:17.166-04:00Loosing your hair is minor, but stock up on the ha...Loosing your hair is minor, but stock up on the hats, I'd never been so cold in my life.<br />I am 2 years out, life is good - stress is bad. Chin up kiddo nobody helps you like you.<br />I have 9 fractured vertebrea and lead an active life. The docs do not expect them to heal, but you know what? physical therapy taught me to use other muscles and not limit myself. A good back brace, some PT and you can do just about anything but fall on your butt.Unknownhttps://www.blogger.com/profile/10097327811917623039noreply@blogger.comtag:blogger.com,1999:blog-3717294245181788695.post-34348560525927667612010-04-10T11:01:17.841-04:002010-04-10T11:01:17.841-04:00My dad is just starting and I'm certain your s...My dad is just starting and I'm certain your story will encourage him! I'm rooting for you!!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3717294245181788695.post-32591787951632015442010-02-24T16:08:24.262-05:002010-02-24T16:08:24.262-05:00Thank you for sharing your story. You are prayed f...Thank you for sharing your story. You are prayed for!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3717294245181788695.post-12621488816164057122010-02-23T20:28:14.702-05:002010-02-23T20:28:14.702-05:00It gets better, you adjust to living with myeloma ...It gets better, you adjust to living with myeloma and the treatment + the hair loss thing is petty, you will have fun with scarves and caps and maybe even wigs.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3717294245181788695.post-47225511509447375752010-02-23T14:57:43.370-05:002010-02-23T14:57:43.370-05:00Keep going girl, I'm just starting and I hope ...Keep going girl, I'm just starting and I hope I have your strength xx.<br />Mike.Lorna A.https://www.blogger.com/profile/14476134649136494702noreply@blogger.com