When were you diagnosed and how old were you? (example: 8/8/08 - age 28, IGG Kappa)
What led to your diagnosis? (example: broken vertebra)
Explain your treatment history (bulleted list)
EXAMPLE:
- 10/2009: Started RVDD
- 2/2010: Completed 7 cycles of RVDD
- 3/2010: Autologous Transplant #1
What has been the hardest thing about your MM journey?
What are the top lessons learned that you would want a newly diagnosed MM patient to know about?
How have you been able to stay positive and encouraged in your MM journey?
After being diagnosed... What perspective was changed the most?
ReplyDeleteI would be interested in knowing if they knew what MM was when they were diagnosed and how many times they were referred before actually being diagnosed.
ReplyDeleteI always like to know why people chose a certain treatment (if they were given a choice, that is ... For example, to have a transplant or not have a transplant, etc.). I also like to know about the side-effects of different treatments. Also, where people are getting treated (Mayo, etc.)
ReplyDeleteI think I would be interested to know 1. If they have any other MM diagnosis in their family 2. What
ReplyDeletedoc/hospital they use if they want to share this info and 3. If they worked in a field with or were exposed to toxic chemicals prior to dx.
What MM sites or blogs had you found good information from after diagnosis? I spent a lot of time on the internet after my fathers diagnosis...
ReplyDeleteAlso, like tim's wife:if they worked in a field with/exposed to toxic chemicals prior to dx (my dad was a machinist..)