Tuesday, July 6, 2010

Phil's Vacation: Day +12

Today I was released! Back home I returned to a couple of kids that were tickled pink to see me. Iris was so happy she just kept giggling. She sat in my lap for an hour as we watched Thomas together and I just couldn't stop rubbing her feet and kissing the top of her head. Man, that felt so sweet. Later, Ocean got up from his nap to find me resting on the couch and he just broke out in laughter and excitement. All in all, I felt like this was a triumphant return filled with joy. These kiddos make me realize why I need to put everything I have into moving beyond Multiple Myeloma. To not see these kids grow and mature and one day become their own, would be a great misfortune. Although, I will continue to trust in the unseen and unexplainable, I will fearlessly believe in a cure.


It didn't take long for me to crash after hanging out with the kids for a little bit. I have learned from my previous transplant that my hemoglobin is one of the best indicators in terms of how I will be feeling. Once it drops under 8.0, I am a wreck. It's hurts to think and do anything other than sleep. That was this afternoon. Because I left the hospital two days earlier this go around, I am not getting all the red blood cell transfusions, which would boost my hemoglobin and allow my heart to chill a little. I believe the red blood cells are the last blood cell to bounce back, so I expect this week will consist of me being reunited with our comfortable king size bed.

What's up Next?
  • Wednesday: Blood work / labs with possible transfusions and possible PICC line removal
  • Day +30: Blood work to determine state of disease and how I am recovering. Stop wearing mask outside... yippee!
  • Day +60: Blood work to determine state of disease and how I am recovering. Possibly begin my maintenance therapy (i.e. more low-dose chemo)
Please note that I will be slowing down on the number of blog posts. I accomplished my goal of capturing my BMT experience for those who will be going through that in the future. I am now in need of some serious recovery, which will probably lead to me taking a vacation from social media and focusing on rest and rehab for the next 6 months. All and every expect of the Cancer Kicker Foundation is owned and managed by Zak and Steve. Keep them busy by getting some dominate gear. (DominateGear.com)

Thanks everyone for tuning in and providing support and encouragement over the last two weeks. It definitely helped us through BMT #2!!! And on the 13th day he (Phil) looked back at all that he had been through and done....and RESTED!

8 comments:

feresaknit said...

And how's Cassie doing?

kerimiddaugh said...

Welcome home!

Sandy said...

And well he should... you will still be on the prayer list in any case.

Preferred Customer/ Janice said...

Well Mr Overachiever, reality sometimes pops its head in the door...congrats on the homecoming..personally I took the red blood cell transfusion to get me back on track. One seems to do better with less exhaustion on the body..Take care, rest, enjoy...

Julie said...

Congrats on your success Phil! Your postings have been invaluable to me! Thank you! Day 2 for me... tired, but doing well so far. Enjoy being home and being a daddy and hubby again. Yes, focus on your recovery! Thank you, Julie

Athletes in Action Ultimate Training Camp said...

Good onya Phil and family! :)

Sean Murray said...

Welcome home, Phil!

You would, no doubt, fight very hard for yourself in this situation, but when you realize that all of your efforts are keeping Ocean, Iris and Thomas' daddy with them and Cassie's husband near,that's when the Dominator comes out in full force. Rest well! Recharge. S'Myeloma's all around at your continuing good news. And I'm with you, we're aiming for a cure.

Sean

Elka said...

Congratulations on making it through all of this! Now it's time to dominate in resting as much as you've dominated in everything else.