When were you diagnosed and how old were you? (example: 8/8/08 - age 28, IGG Kappa)
October 31st, 2009. 58 years young
Did you know what MM was prior to diagnosis?
Is there anyone else your in family with MM?
No...I think my mother may have had it.
What led to your diagnosis?
I had been sick for over a year. I went to every doctor I could think of, but everyone turned me away or passed me on to someone else. My Obgyn finally gave me the right test, and told me I would have to see one more doctor to see what was wrong with me. She knew.
How many times were you referred before actually being diagnosed?
At least 7 times.
Where have you received treatment?
Kaiser Hopsital in San Rafael, Ca.
Explain your treatment history
11/2009 Velcade 2x weekly.
11/2009 Orivia (sp?) 1x monthly
Starting Autologous transplant 5/2010
Why did you or your doctor choose a specific treatment?
Because I have chromosome damage.
What has been the side effects of the different treatments?
Dizziness, confusion, nausea, vomiting, dirrarhea, loss of appetite, weight loss (yay).
What has been the hardest thing about your MM journey?
Having to go to the hospital 3x a week. It's like a job!
What are the top lessons learned that you would want a newly diagnosed MM patient to know about?
Stay positive, find out what works for you, and accept the help you need!
How have you been able to stay positive a.d encouraged in your MM journey?
Support from loved ones.
After being diagnosed... What perspective was changed the most?
That people who don't find an answer, should go back and find one!
Did you or a parent work in a field with or were exposed to toxic chemicals prior to diagnosis?
Besides being raised in a smoke-filled home, no.
What MM sites or blogs had you found good information from after diagnosis?
***To add your story to Myeloma Mondays copy and paste this questionnaire (click here) and send it in an email to cancerkicker at gmail dot com. I would love to share your story! -Phil