Thursday, February 11, 2010

Share your story on MM for Dummies!

If you would like your story of that of a loved one posted on MM for Dummies, copy and paste the questions below in an email and send your response to me at phil at cancerkicker dot org. Thanks for your willingness to share your story for others to grow in their knowledge of Multiple Myeloma!

Where were you born and raised?

Where do you currently live?

When were you diagnosed and how old were you? (example: 8/8/08 - age 28, IGG Kappa)

Did you know what MM was prior to diagnosis?

Is there anyone else your in family with MM?

What led to your diagnosis? (example: broken vertebra)

How many times were you referred before actually being diagnosed?

Where have you received treatment?

Explain your treatment history (bulleted list)
EXAMPLE:
  • 10/2009: Started RVDD
  • 2/2010: Completed 7 cycles of RVDD
  • 3/2010: Autologous Transplant #1

Why did you or your doctor choose a specific treatment (For example, to have a transplant or not have a transplant, etc.)?

What has been the side effects of the different treatments?

What has been the hardest thing about your MM journey?

What are the top lessons learned that you would want a newly diagnosed MM patient to know about?

How have you been able to stay positive and encouraged in your MM journey?

After being diagnosed... What perspective was changed the most?

Did you or a parent work in a field with or were exposed to toxic chemicals prior to diagnosis?

What MM sites or blogs had you found good information from after diagnosis?

Send a photo if you would like!

3 comments:

Liz said...

I love that you're doing this Phil!

I too am SO curious to see if there is any correlation with exposure to chemicals, metals, fumes etc......
My aunt was a hair stylist for 30+ years and there is no doubt in my mind that all of those different chemicals jacked up her DNA.

Hope you're feeling good!
Liz

Phil Brabbs said...

Thank Liz! I too am very interested in research that looks at diagnosed patients and the relationship between exposures to herbicides, pesticides, dioxins, etc. There's a lot of focus on a cure, and rightfully so, but cancers will become more and more prevalent if we remain ignorant to the most basic of questions...WHY?

Nerissa Picadizo said...

Hi Phil,

The collection of answers to this questionnaire could possibly be a great basis for further research... and more importantly, to give more insights and inspiration regarding how to navigate one’s way around MM....

Keep up the great work!!

Much Support & Health your way!!