No, but my grandfather had leukemia back in the 1960s
What led to your diagnosis?
I was out of breath back in November 2009. My primary care physician kept trying different remedies (for reactive lung disease, asthma, pernicious anemia), looking for the source of my symptoms.
How many times were you referred before actually being diagnosed?
Twice: to a pulmonologist (who took CBC and found severe anemia) and two weeks later to hematologist/oncologist.
Where have you received treatment?
I'm receiving treatment at MacNeal cancer center, in consultation with doctor from Rush Presbyterian.
Explain your treatment history
2/22/2010 - will receive my first chemo treatment. 40 mil of Dexamethasone, IV of Velcaid, and something to promote red blood production.
Why did you or your doctor choose a specific treatment?
They are consulting with a group before making decisions.
What has been the side effects of the different treatments?
I will let you know. Hopefully, they will be minimal to none.
What has been the hardest thing about your MM journey?
Dealing with the shock, and insensitive HR personnel that thought I was making a big deal about skin cancer. (I applied for FMLA and short term disability to cover days off after my sick/vacation time runs out.)
What are the top lessons learned that you would want a newly diagnosed MM patient to know about?
Keep going back to your doctor if you are not satisfied with their off-the-cuff diagnosis; stay in close communication with your doctor.
How have you been able to stay positive and encouraged in your MM journey?
Most of the time, so far. I lost my positive focus after talking to HR.
After being diagnosed... What perspective was changed the most?
I realize how important it is to look for the positive side of everything and to remember to laugh at the funny things.
Did you or a parent work in a field with or were exposed to toxic chemicals prior to diagnosis?
No. But my grandfather used to apply insecticides by hand to his crops, using a cloth bag.
What MM sites or blogs had you found good information from after diagnosis?