- Cleveland, Ohio
- Chagrin Falls, Ohio
- 2/14/94- age 34, non-secretory-
- no
- not that I know of
- Broken fifth cervical vertibra
- None
- University Hospital of Cleveland and the Burzynski Research Clinic
- 3/95- five cycles of VAD
- 9/95- 2 cycles of cytoxan
- 12/95- pbsct
- 10/96- local radiation
- 9/97- second relapse-
- 11/97- began antineoplaston therapy
- 4/99- complete remission
- VAD, cytoxan, pbsct was considered standard, aggressive therapy at the time-
- extensive nerve damage, chemobrain, irritable bladder, GI problems-
- cancer diagnosis originally, side effects- I am okay now.
- Life is all about priorities.
- Creating the Galen Foundation, launching beating-myeloma.org has been a tremendous help to me.
- My view of life has changed in that I have changed my priorities.
- I worked in a commercial printing plant.
- MMsupport, Margaret's Corner and beating-myeloma.org of course.
***To add your story to MM Mondays copy and paste this questionnaire (click here) and send it in an email to cancerkicker at gmail dot com. I would love to share your story! -Phil
5 comments:
Wow, 1994! That's amazing! I'm also amazed that you have found so many people diagnosed at such a young age. I'm planning to fill out my own survey sometime soon, I swear. :)
I saw something recently about a lady who'd had myeloma for 22 years, she had popped her clogs, but has to be forgiven for that since she was 83!
Karen- I am going to hold you to that!
"popped her clogs" - that's a new phrase for me that I'll now never let go!
WOW! I said it once and I'll say it again, the exposure similarities before MM diagnosis is intriguing.
Humor me here Phil, once your FB fan page gets a significant following it would be interesting to set up an informal poll on this very subject. =)
Liz
I wanted to add that one of the ladies from our London and area support group was diagnosed in 1986 long before stem cell transplants and the meds that we have now. The first time I met her she looked at me and said "See, Myeloma is not a death sentence, live each day as it comes." She had had quite the journey and was continuing to live her life as fully as she could. She passed away in January 2010 from a cold that she could not shake, but I am sure that when she went, she went out dancing. There are several people that I know that are 11+ years. New drugs and new treatments are being discovered all the time.
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