When we started this journey back in 2008 there were very few MM bloggers out there. The few that were, we ate up every word of every blogpost in search of hope that said something better than a newly diagnosed MM patient has a 35% chance of living 5 more years. This stat needs some serious revision. Right Nick? :)
And hope we found! So thanks to all of those people who are in the trenches with MM and willing to share their insight, wisdom and even hard times with everyone else.
Today I wanted to mention a new blogger to the scene who we connected with through our blog. They are a young couple with a young son. The husband is a high risk patient (here's his story) and has a tough road ahead of him. The good news is that he has a tough wife on his side.
I think this growing online MM community is HUGE. I think the collective power in this group will help advance the science and challenge oncologists across the globe to consider the most current therapy that is getting the best results. We all need to continue to push forward and support one another. We need more centers of excellence, more individualized treatment therapies and more research $$$.
We can do this so....Let's dominate....Together.
-Phil
5 comments:
Thanks, Phil for helping me spread the word of our new blog!!! As always, you are a blessing to the MM community.
Great Post!!
I have learned SO much from quite a few of the MM blogs I frequent.
I'm just one of many helping to care for my aunt who has MM.
(btw: who's day +6 of her SCT and doing AMAZING)
So a huge thanks to you for being brave enough to put your story out there for all of us to read.
Liz
Thanks Phil for leading the way in connecting the MM community and bloggers to one another. It really does begin to feel like a family, bonded together by a diagnosis and deep desire to dominate this disease. Hopefully we can support one another in the process. Welcome Tiffany and Kirk...
Phil, do you know anyone blogging about mm before 2005?
You nailed it PHil. Without yours and others blogs, I would feel so lost. My dad was diagnosed in September at age 55 with stage IIIb MM. He finished 6 rounds of RVD and is in complete response with a stem cell transplant on the horizon. We count our blessings everyday and pray for the many young fighters out their with young families. The blog I keep for my family: http://kissitcancer.blogspot.com/
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