Wednesday, February 10, 2010

What do you want to know?

I am excited to report that people are very willing to share their MM journey! Before I start the interview process, I thought I would ask folks what questions I should ask. Below is a rough list I pulled together, but please add a comment with additional questions of interest. I want to make sure we get a good list before I start collecting responses. Thanks everyone!

When were you diagnosed and how old were you? (example: 8/8/08 - age 28, IGG Kappa)

What led to your diagnosis? (example: broken vertebra)

Explain your treatment history (bulleted list)
  • 10/2009: Started RVDD
  • 2/2010: Completed 7 cycles of RVDD
  • 3/2010: Autologous Transplant #1

What has been the hardest thing about your MM journey?

What are the top lessons learned that you would want a newly diagnosed MM patient to know about?

How have you been able to stay positive and encouraged in your MM journey?


S. DeBoer said...

After being diagnosed... What perspective was changed the most?

Meghan said...

I would be interested in knowing if they knew what MM was when they were diagnosed and how many times they were referred before actually being diagnosed.

Karen said...

I always like to know why people chose a certain treatment (if they were given a choice, that is ... For example, to have a transplant or not have a transplant, etc.). I also like to know about the side-effects of different treatments. Also, where people are getting treated (Mayo, etc.)

tim's wife said...

I think I would be interested to know 1. If they have any other MM diagnosis in their family 2. What
doc/hospital they use if they want to share this info and 3. If they worked in a field with or were exposed to toxic chemicals prior to dx.

Tracie said...

What MM sites or blogs had you found good information from after diagnosis? I spent a lot of time on the internet after my fathers diagnosis...
Also, like tim's wife:if they worked in a field with/exposed to toxic chemicals prior to dx (my dad was a machinist..)