When were you diagnosed and how old were you? (example: 8/8/08 - age 28, IGG Kappa)
What led to your diagnosis? (example: broken vertebra)
Explain your treatment history (bulleted list)
EXAMPLE:
- 10/2009: Started RVDD
- 2/2010: Completed 7 cycles of RVDD
- 3/2010: Autologous Transplant #1
What has been the hardest thing about your MM journey?
What are the top lessons learned that you would want a newly diagnosed MM patient to know about?
How have you been able to stay positive and encouraged in your MM journey?
5 comments:
After being diagnosed... What perspective was changed the most?
I would be interested in knowing if they knew what MM was when they were diagnosed and how many times they were referred before actually being diagnosed.
I always like to know why people chose a certain treatment (if they were given a choice, that is ... For example, to have a transplant or not have a transplant, etc.). I also like to know about the side-effects of different treatments. Also, where people are getting treated (Mayo, etc.)
I think I would be interested to know 1. If they have any other MM diagnosis in their family 2. What
doc/hospital they use if they want to share this info and 3. If they worked in a field with or were exposed to toxic chemicals prior to dx.
What MM sites or blogs had you found good information from after diagnosis? I spent a lot of time on the internet after my fathers diagnosis...
Also, like tim's wife:if they worked in a field with/exposed to toxic chemicals prior to dx (my dad was a machinist..)
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